Hi Ladies,
Thank you very much.... she definitely went downhill poor baby is still ventilated 2 weeks later and she's having twice daily chest physio.... Although it is finally looking clear on x-ray's and for the first time since her meltdown she's been smiling and wiggling today even with a ventilator tube up her nose.
Anyway moving forward the hospital have realised her issues lie down closer to her bronchial tubes near her Lungs hence why they believe her aeortopexy didn't work. So they now want to do a bronchogram tomorrow.......
During a bronchogram a camera contained in a flexible tube (bronchoscope) is inserted into the airway to look closely at the airway wall. This allows drs to see if the lining of the airway is inflamed or compressed.
Secondly, a tiny amount of contrast a substance that shows up well on X-rays is put into the airway and X-rays are taken from various angles to give accurate measurements of the size of the airway and where the problems seem to stem..... from there they'll decide if we trial a cpap mask and wean her off it slowly as her airway gets better..... or if they need to do a Tracheostomy (which they think may need to be ventilated) this is quite a scary thought... she'd need 24hrs care but I know we'll cope the best we can xx